Date of Birth: 1-15-90
Main Diagnosis: Sturge Weber Syndrome (rare brain disorder),
mental retardation, and developmental delays
Featured on: August 2004
Parents: Carolyn & Ken
Siblings: None
Kristofer's most profound limitation
is severe seizures (hundreds each day) which are difficult to control.
Protecting him from injury during a seizure can be difficult too.
But it's very important.
Kristofer is totally dependent upon his parents for all activities
of daily living. He only has the abilities of a small baby. He cannot
talk, and he wear diapers.
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fund information, and a current list of interests and hobbies, visit
our "Kids List" page.