Here's David's updated story, as written by his mom:

David was diagnosed with Pseudotumor Cerebrii/Intracranial Hypertension on April 15, 2009. He was going blind in both eyes, due to the increased spinal fluid. This caused him to have horrible migraines. He has Lumbar punctures to relieve the pressure in his spine, which keeps the pressure out of his brain and helps his eyesight.

In addition, he has Epilepsy, Autism, Sleep disturbance, Anemia, migraines, and neurocognitive deficits. David sees multiple doctors every month for his illnesses. He has IV iron infusions at least monthly as well. He takes over 14 different medications daily (they change his meds frequently). He receives speech therapy as well as occupational and physical therapy.

 

David almost lost his foot to a severe staph infection in the Spring of 2006 and continues to use a brace and orthopedic shoes as a result of that.

 

He struggles with school because his working memory is poor. He has been misunderstood by many; but through it all, he maintains a gentle soul. He always strives to do his best and believes the best about others. He has made great strides in his education these past two years, since Mom began home schooling him, where he can learn at his own pace.

 

His interests have branched out. He loves woodworking and the Explorers program for Fire Fighters.

Because of his subtle seizures and the effects of his necessary medications, David has difficulties with alertness, endurance, speech, and consistency. He must modify his life to deal with these challenges. He is a WONDERFUL brother to his older brother, Christian and his younger sisters, Rachel and Lisa (also a Hugs and Hope child)
 

David wants to be a train engineer or pilot when he grows up. His parents encourage him to reach for the stars and to never give up on his dreams.

For email and snail mail addresses, as well as interests and hobbies, visit our "kids list" page.

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