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KEEGAN JOHN K.

Date of Birth: June 28, 2007

Main Diagnosis:
Brain Cyst

Featured on: December 2010

Parents: Marc and Scholeigh

Siblings: sister Savana K (5/28/99) and brother Chayce K (6/6/02)

Limitations:  Development and physical delays


Keegan was born with bilateral club feet, which had to be casted when he was just 4 hours old. He must now wear braces 12 hours each day.

 Because he threw up every time he was fed, Keegan was tested and found to be allergic to both milk and soy.  He was placed on an Elemental Diet.

At 3 months old, he had his first surgery on his legs; and he had a second at 6 months old.  

Before he was 2, Keegan was diagnosed with Eosinophilic Disorder and could have only formula (no food) for six months.  He's allergic to several foods as well as a host of medications and environmental allergens, and he gets allergy shots every week.

When  Keegan was found to have a very large Arachnoid Cyst covering and pushing on half his brain, he needed ANOTHER surgery!  The cyst was left in, but it is draining (because it fills with cerebral spinal fluid.)  It has shrunk somewhat, but it's still large.  His development and eye site are affected by the cyst;  and he needs growth hormone treatments because of damage to his pituitary gland from the cyst.

Keegan will also need dental surgery, due to damage from reflux disease.

Currently, Keegan can eat two foods:  rice and wheat; but he may need a feeding tube eventually.  His parents hope to avoid that!

Keegan attends preschool where he receives speech therapy, physical therapy, and occupational therapy.

His mom says that, in spite of living 98% of his life in medical facilities or traveling for medical care, Keegan is an upbeat and happy little boy who "loves hugs and smiles."

For email and snail mail addresses, personal web site URL, medical fund information, and a current list of interests and hobbies, visit our "Kids List" page.

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