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KODY C

Date of Birth: 12-14-01

Main Diagnosis:
Hemimegalencephaly

Featured on: March 2004

Parents: Kimberly and Chad

Siblings: Kassandra (twin) 12-14-01

***** FROM HIS MOM NOV 2006*****

Kody was born with a very rare seizure disorder called Hemimegalencephaly.  At one day old he started having uncontrollable seizures and they continued to increase to hundreds a day.  At the age of 11 weeks old the seizures threatened his life and he had to have a drastic surgery called a hemispherectomy.  (which removes portions of the brain and COMPLETELY disconnects the right side from the left side, so they can no longer communicate with each other) .


He had to have an emergency shunt placed 3 months later.  He has had a total of 9 surgeries  He does face at least 2 more surgeries, ear surgery and surgery to remove hardware from his hips.  He is working very hard on walking and talking.  He knows about 50 signs, and he recognizes all 26 of his letters, and up to 20 in his numbers with a little struggle.  Despite his limitations he is a very happy happy well adjusted little boy. 

Kassi is his twin sister who loves him very much.

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