Date of Birth: February 12, 2007
Main Diagnosis: PKU and Chiari Brain Herniation
Featured on: December 2010
Parents: Lewis & Pamela T
Sisters: Maddie, Deanna
Brothers: Russell, Jake, Sketer, and
Michael
At four days old, Luke was diagnosed with Phenylketonuria (PKU), a
metabolic disorder in which proteins are toxic to his neurosystem.
He also has Ehlers Danlos Syndrome, a hypermobility disorder,
Chiari Malformation (a brain herniation), Osteopororis, and Asthma.
Luke's the youngest of seven children. His mom describes him as
"full of life and adventure."
For email and snail mail addresses, personal web site URL, medical
fund information, and a current list of interests and hobbies, visit
our "Kids List" page.