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LUKE T.

Date of Birth: February 12, 2007

Main Diagnosis:
PKU and Chiari Brain Herniation

Featured on: December 2010

Parents: Lewis & Pamela T

Sisters: Maddie, Deanna

 Brothers: Russell, Jake, Sketer, and Michael


At four days old, Luke was diagnosed with Phenylketonuria (PKU), a metabolic disorder in which proteins are toxic to his neurosystem. 

He also has Ehlers Danlos Syndrome, a hypermobility disorder, Chiari Malformation (a brain herniation), Osteopororis, and Asthma.

Luke's the youngest of seven children. His mom describes him as "full of life and adventure."

 


For email and snail mail addresses, personal web site URL, medical fund information, and a current list of interests and hobbies, visit our "Kids List" page.

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