Mattie was diagnosed with Klippel Feil Syndrome, (fusion of cervical vertebrae) at six months old. She has unilateral hearing loss, and wears a hearing aid.

This past April (2004) Mattie had spinal surgery at the Shriners' Hospital in Philadelphia. Doctors fused her skull and the six vertebrae in her neck. This is her second surgery this year. It will straighten her neck and prevent her from developing any more instability.

Mattie will need to wear a "halo" at least through December. The exact time will depend upon how quickly her body heals afte this fusion.

Her parents believe Mattie's involvement with HUGS and HOPE will help make her time in the halo more enjoyable. They are also hoping to find some organization to help them with flights from Atlanta to Philadelphia for Mattie's treatments and check ups. If you can help in that area, please contact Mattie's family.

For email and snail mail addresses, personal web site URL, medical fund information, and a current list of interests and hobbies, visit our "Kids List" page.

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