Maya's disease is genetic. It affects all systems of her body as well as the way her body makes and uses energy. She has difficulty with balance and communication and sometimes needs assistance walking. She is also hearing and visually impaired.

She has seizures and has suffered strokes. She uses a feeding tube.

Despite her difficulties, Maya remains a happy, fun-loving child.

She loves to play and sing and she's an only child.

For email and snail mail addresses, personal web site URL, medical fund information, and a current list of interests and hobbies, visit our "Kids List" page.

For CURRENT UPDATES visit our updates page.