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Nate (William Nathan) was born prematurely, and his lungs were underdeveloped.
He was unable to breathe on his own for the first weeks of his life.
During the first year, Nate had 19 hospital admissions for Respiratory
Distress Syndrome. At eight months old, he had his first bronchoscopy
and endoscopy. They revealed that he had been suffering since birth
from severe GERD (reflux), aspiration pneumonia and severe esophagitis
(red, bleeding, inflamed esophagus).
Nate had a Nissen Fundoplication when he was less than a year old.
This is a surgical procedure to wrap the stomach around the esophagus
to form a pouch so nothing can leave the stomach and go up into
the throat. This helped for a few weeks, but then he began gagging
and retching. He got frequent cases of hives, wheezing, and chronic
ear and sinus infections. This, his family learned, was from allergic
reactions to milk, eggs, soy, and about 20 foods.
At 16 months old, Nate started on an amino acid based formula and
he's still bottle fed at three years old. In October of 2003, he
was diagnosed with a rare auto immune disease known as Eosinophilic
Enteropathy as well as Asperger's Disease (autism) and Hyperlordosis.
A feeding tube into his stomach seems unavoidable in the future.
He also suffers a lot of back, leg, and hip pain.
Nate will have his 29th surgery this month.

His speech is very delayed, he needs braces on his legs, and he
has developmental delays.
For email and snail mail addresses, personal web site
URL, medical fund information, and a current list of interests and
hobbies, visit our "Kids List"
page.
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