Robert has a rare muscular dystrophy and a seizure disorder,  in addition to heat intolerance and a progressive mitochondrial defect.  No cure exists for his condition, but he is on multiple medications to help improve his quality of life. 

Due to his muscle weakness and fatigue, tremors, severe allergies, and other issues, Robert is home schooled.  He uses an electric wheelchair if he needs to go any distance, and he wears a cooling vest when he goes outside in summer.

Robert's mom describes him as a sweet, funny, active, and loving boy.  She jokes that it worries her because he's SO good!

Robert, whose sister Jamie also has Mitochondrial Myopathy,  enjoys swimming, reading, video games,  and his tiny Yorkie dog, Bella, who loves to play with him.  His room is decorated in SpongeBob decor.

For email and snail mail addresses, personal web site URL, medical fund information, and a current list of Robert's nterests and hobbies, visit our "Kids List" page.

For CURRENT UPDATES on Robert, visit our updates page.