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RYAN B

Date of Birth: 3-19-96

Main Diagnosis:
Spinal Muscular Atrophy (SMA)

Featured on:

Parents: Lora and Stephen

Siblings: Jorie (10-18-02)    Joshua B (05-13-07)


At the age of 11 months, Ryan was diagnosed with Spinal Muscular -- a genetic disease that causes wasting of the muscles that control walking, crawling, and standing up.

Ryan has never walked, and he mastered his electric wheelchair at 18 months old. He's fed through a G-Tube, due to difficulty with swallowing. Because of his muscles' lack of mobility, Ryan is at risk for pneumonia and dehydration.

He has a great sense of humor and masters anything he sets out to accomplish.

Here is an update from Ryan's mom on Feb 11, 2007:.
 
Ryan B. was born with a disease called Spinal Muscular Atrophy. He was diagnosed at 11 months and has never walked or crawled. He has driven a power wheelchair since the age of 2. He is a very bright boy and has a great sense of humor. He has many challenges. But, has the most amazing attitude towards life! Since the age of 3 he has been hospitalized multiple times for pneumonia. Children with SMA have very weak muscles, including their chest muscles that help them cough. So, when he gets a common cold, it could turn to pneumonia very quickly. Because of this, we have to be extremely careful with him. Especially during winter months to ensure he stays well.
 
Ryan has a younger sister, Jorie who is SMA free. He also has a new baby brother, Joshua, also SMA free. He was born on Mother's Day, 2007!
 
Thanks!
Lora (Ryan B's mom)
 

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