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At the age of 11 months, Ryan was diagnosed with Spinal Muscular
-- a genetic disease that causes wasting of the muscles that control
walking, crawling, and standing up.
Ryan has never walked, and he mastered his electric wheelchair
at 18 months old. He's fed through a G-Tube, due to difficulty with
swallowing. Because of his muscles' lack of mobility, Ryan is at
risk for pneumonia and dehydration.
He has a great sense of humor and masters anything he sets out
to accomplish.
Here is an update from Ryan's mom on Feb 11, 2007:.
Ryan B. was born with a disease called Spinal Muscular Atrophy. He
was diagnosed at 11 months and has never walked or crawled. He has
driven a power wheelchair since the age of 2. He is a very bright
boy and has a great sense of humor. He has many challenges. But,
has the most amazing attitude towards life! Since the age of 3 he
has been hospitalized multiple times for pneumonia. Children with
SMA have very weak muscles, including their chest muscles that
help them cough. So, when he gets a common cold, it could turn to
pneumonia very quickly. Because of this, we have to be extremely
careful with him. Especially during winter months to ensure he
stays well.
Ryan has a younger sister, Jorie who is SMA free. He also has a
new baby brother, Joshua, also SMA free. He was born on
Mother's Day, 2007!
Thanks!
Lora (Ryan B's mom)
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