Updates on HUGS and HOPE Kids
(Parents, send updates here)
 

NOTE:  Lisa B. will be hospitalized at Duke University from Nov. 14 till Nov. 20. 
Also, her dad lost his job and the family's dealing with a lot of stress. 
Please pray for them and send some happy mail!

Children's Updates:

REMEMBER!  Record what you mail on our Mail Stats page. (To help us send mail to children who need it.)

Click on the letter of the child's first name below, to go to the update. 

To see each child's photo and story, click on their name.

Alexander W
Date updated: 11/14/2008
Age: 11
Diagnosis: aparxia, restless leg syndrome
Current email address: ladykissendyl@comcast.net
Update: Alex is now off all meds until he sees his Dr. Nov 25th and new plan is made. Hopefully he does well off but it is wait an see, since this condition is not common in kids.

Andrew W
Date updated: 10/19/2008
Age: 5
Diagnosis: ALL
Current email address: andrewbw3@hotmail.com
Update: Andrew was just to see his Doctors for his 3 month check. All is good. He has been quit healthy except for those everyday colds and such. He is really enjoying going to school.

Andruw S
Date updated: 11/11/2008
Age: 11
Diagnosis: retinablastoma
Current email address: patsrugrats@earthlink.net
Update: ANDRUW IS DOING GOOD AT THIS TIME REALLY ENJOYING SCHOOL AND GETTING READY FOR THANKSGIVING

Angel P
Date updated: 10/17/2008
Age: 6
Diagnosis: Clear Cell Sarcoma, Epilepsy
Current email address: stephoneyp@yahoo.com
Update: Angel's seizures are getting worse and more often. She has been removed from school by her doctor. She is now on anti-anxiety drugs, after her therapist diagnosed her with ADHD and OCD.Thanks for the mail she checks it everyday.

Aschdon B
Date updated: 10/16/2008
Age: 9
Diagnosis: SMA Type II
Current email address: smamom2three@yahoo.com
Update: Aschdon is competing in Special Olympic bowling right now. Wish him luck.

Ariel M
Date updated: 10/22/2008
Age: 14
Diagnosis: Epilepsy,Static Encephalopathy
Current email address: gillinn7@msn.com
Update: Ariel just got over having a bug and is feeling better.We are having to shift her meds around a bit,but is otherwise doing great.

Austin B
Date updated: 9/12/2008
Age: 9 yrs old
Diagnosis: CP
Current email address: pedsrndt@yahoo.com
Update: Austin is in 3rd grade and doing well in school. Has had some increased seizure activity lately.

Austin G
Date updated: 10/9/2008
Age: 12
Diagnosis: Leukemia
Current email address: etgatus@yahoo.com
Update: 3 weeks ago Austin was inpatient for food poisoning.(can't trust even upscale restaurants) Last week he got very sick was unable to walk without assistance for days. Today, he is doing much better.

Austin W
Date updated: 10/18/2008
Age: 13
Diagnosis: Liver disease
Current email address: lilbreeches@alltel.net
Update: Austin is doing very well. He will have bloodwork done and they may lower his immunosuppression meds. He is average on growth/weight scales and doing well in school. He has trouble with catching colds and swelling lymph nodes.

Becky B
Date updated: 11/2/2008
Age: 14
Diagnosis: heart disease etc
Current email address: gcbbunny@sympatico.ca
Update: Becky would like to thank everyone for all the cards & gifts. With all the homework this year no time for personal replys Saw Cardiology on Thurs. did very well Convict for Halloween with neighbours

Bethany P
Date updated: 10/27/2008
Age: 14
Diagnosis: epilepsy, lupus, JRA, Celiac
Current email address: chellie_37806@yahoo.com
Update: Bethany is currently in the hospital having a video eeg ran due to increased seizures even with the new meds. her dad was laid off a month ago and has had no luck finding a new job please remember our family in ur prayers

Blake S
Date updated: 11/20/2008
Age: 16
Diagnosis: Autism,Primay Immunodeficiency
Current email address: ragamuffinsc@gmail.com
Update: Blake has a major sinus infection. He is teetering on having to start IV antibiotics. He will have a follow up with Endocrinology on 11/24. He says he bones are hurting real bad!! Mom fell & broke her foot(compound break) PRAY!!!

Brianna BU
Date updated: 11/19/2008
Age: 14
Diagnosis: Canavan Leukodystrophy
Current email address: ydb739094@aol.com
Update: The Video Uro Diagnostic test was the 18th and it showed that she does good with pressure build up in the bladder to not affect the kidneys but she does need to continue to be straight cath from now on. 3 - 4 times a day.

Bryant W
Date updated: 10/22/2008
Age: 4 yrs
Diagnosis: dravet syndrome
Current email address: amyweasel95@yahoo.com
Update: Bryant had an apt with his Neurologist and IQ testing wtih Pyschologist. His development is comparable to a 3 yr old. We are looking into changing medications again because his seizures are becoming more frequent.

Caleb G
Date updated: 10/16/2008
Age: 9
Diagnosis: Leukemia & Clubbed Foot
Current email address: lilmsshaeshae27@yahoo.com
Update: Caleb is doing very well right now. He has a cold but all appointments are coming out that he is nice & healthy; labs are normal. We're really happy about that. Family is dealing with stress.

Cameron S
Date updated: 10/19/2008
Age: 11
Diagnosis: ganglioglioma (brain tumor)
Current email address: yankee_cajun2001@yahoo.com
Update: Cameron attended his 5th Ride for Kids today. He's doing great - getting tall and feeling good. He still enjoys getting the happy mail from all around the world. Thank you so much!

Casey O
Date updated: 11/12/2008
Age: 11
Diagnosis: Spinal Muscular Atrophy type 1
Current email address: caseyandcolinsmom@yahoo.com
Update: Casey has been extremely tired lately. He has double ear infections and some sort of virus although he tested negative for strep and mono. We are planning on cutting his school days shorter in hopes he'll gain back his energy.

Charley T
Date updated: 10/16/2008
Age: 9
Diagnosis: Spinal Cord Deformation
Current email address: vjtkct@yahoo.com
Update: Chiari surgery rescheduled to Nov 3 due to her being sick. Prayers are welcome for surgery and recovery. She is wearing a TLSO spine brace to help correct curvature

Chayce K
Date updated: 11/3/2008
Age: 6
Diagnosis: Eosinophilic Esphogitis
Current email address: eos4me@aol.com
Update: Chayce was admitted today to Hurley Medical center for Pneumonia and a prominent Heart Murmur.. Please pray for him and our entire family!! Love~ Mom Shay

Colin O
Date updated: 10/29/2008
Age: 7
Diagnosis: spinal muscular atrophy
Current email address: caseyandcolinsmom@yahoo.com
Update: Colin is getting over a cold but handled it pretty well. He visited school for picture day and got to spend time with his classmates. He's looking forward to the holidays. Prayers for a healthy winter!

Colton M
Date updated: 10/31/2008
Age: 11
Diagnosis: retinitis pigmentosa
Current email address: lrobbie@bak.rr.com
Update: Colton is in the sixth grade. He is slowly losing his eyesight. We appreciate happy mail as well as uplifting messages to his website: caringbridge.org/ca/coltonmeyer. Thank you!

Connor B
Date updated: 10/31/2008
Age: 4
Diagnosis: terminal brain & spine cancer
Current email address: etb262000@yahoo.com
Update: So far he is doing good. A second look at his MRI showed a small amount of growth. We are continuing the chemo to make sure the growth was not the delay in treatment from June-July. Treatment 10 out of 52. The next MRI is 2/12/09.

Daniel M
Date updated: 10/22/2008
Age: 17
Diagnosis: Epilepsy,hypertension,asthma
Current email address: gillinn7@msn.com
Update: Daniel just went to ortho and will have 3 more weeks in his boot for his broken ankle.His foot is feeling a bit better,but can still be sore at times.

David B
Date updated: 11/12/2008
Age: 14
Diagnosis: Epilepsy,Migraines,Sleep Issue
Current email address: betpj@aol.com
Update: Increased seizure activity, added new seizure medication. Severe migraines. Lots of stress. Dad was laid off after 12.5 years with company. Sister to be hospitalized 11/14/08 for a week

Dillion
Date updated: 11/11/2008
Age: 6
Diagnosis: Hydranencephaly
Current email address: okbabygirl20@yahoo.com
Update: Dillion has his first winter infection and is currently battling croup. Please keep him in your prayers. We would also like to say thank you for all the happy mail, it really brightens his day.

Dustin T
Date updated: 11/10/2008
Age: 13
Diagnosis: adhd odd biploar and etc
Current email address: yugioh0414@yahoo.com
Update: Dustin is in the hospital right now, due to an emotional break down after his step dad passed away.  He is still not gaining weight or height. 

Elizabeth S
Date updated: 11/13/2008
Age: 11
Diagnosis: different
Current email address: muffin0033@yahoo.com
Update: She has a sinus cold. on meds for that. can't wait for Thanksgiving to be with everyoneThen Dec we got to hospital for a week Will update after that Thank you hugs all

Elizabeth I
Date updated: 10/18/2008
Age: 11
Diagnosis: cp
Current email address: tgifdoom@con.net
Update: eliabeth is hasivg a lot of test done this week a brain mri eeg ot eval a bone scan will le you know whe ever thing says soon

Emery B
Date updated: 10/22/2008
Age: 3.5
Diagnosis: lung transplant-rejecting
Current email address: threeglittergirls@yahoo.com
Update: Emery is home from the hospital-thank you for the cards and balloons! His rejecting lungs are having trouble with the cooler air, and his tummy troubles continue. Please pray for his comfort. www.caringbridge.org/visit/emerybock

Emilio R
Date updated: 11/12/2008
Age: 4
Diagnosis: Leukemia
Current email address: teresagr@comcast.net
Update: Emilio is currently in maintenance on chemotherapy. He is having alot of pain in his legs and tires easily. Also having alot of bruising issues which are from platelets.

Emily G
Date updated: 10/23/2008
Age: 8
Diagnosis: ALL Leukemia
Current email address: glenn2709@verizon.net
Update: Emily had been doing well during the ALL chemo maintenence till Oct. She spent 9 days in the hospital for complications, fever and fungal infection. She still loves getting her mail! We are hoping that she stays healthy!

Emma
Date updated: 10/17/2008
Age: 7
Diagnosis: SMA
Current email address: bethml@fuse.net
Update: Emma has been very healthy.

Ethan S
Date updated: 10/1/2008
Age: 6
Diagnosis: Mega Cisterna Magna autism
Current email address: mamastirls25@yahoo.com
Update: Ethan has now been taken out of school and is being home tutored the dr's fear that he has increased fluid in his brain he is not fighting infection well, The boys could really use some cheering

Evan M
Date updated: 11/12/2008
Age: 5
Diagnosis: ganglioglioma brain tumor
Current email address: drc.mllr@gmail.com
Update: Evan has made a wonderful recovery since his surgeries last Dec. And after a few small episodes, is responding well to the new seizure medication. He is continuing to improve in kindergarten...we are so proud of him!!

Hosanna B
Date updated: 10/16/2008
Age: 9
Diagnosis: Neuroblastoma
Current email address: suehart47@peoplepc.com
Update: Hosanna spent 8 wks in the hospital, has steel rods in her back to straighten curvature (scoliosis). She spent all but the last wk of that time in ICU. She's home and doing great now!!

J

Jacob S
Date updated: 10/15/2008
Age: 6
Diagnosis: Spina bifida, brain damage
Current email address: my3sonshines@centurytel.net
Update: Jacob had follow up tests on his bladder. The tests showed that the bladder surgery was successful. Jacob is really enjoying 1st grade. He and his brothers would love to have some happy mail.

Jasmin F
Date updated: 10/16/2008
Age: 15
Diagnosis: Fibrodysplasia Ossificans
Current email address: rojeanne@jasminariel.com
Update: Jasmin is not doing well. She has severe sinus issues, headaches and overall malaise. She is in school part-time and tutored at home. Days are long and boring for her; she is down and frustrated.

Jasmin M
Date updated: 10/4/2008
Age: 7
Diagnosis: CP, MR/DD, microcephaly
Current email address: fawnamcwilliams@verizon.net
Update: Jasmine is enjoying school. She had to take a week off while they fixed the bus that tranports her. Now she is back and enjoying it. She is growing well now that we have increased her fomula.

Jennifer S
Date updated: 11/2/2008
Age: 4
Diagnosis: Myopathy, Failure to Thrive
Current email address: melcody2003@yahoo.com
Update: Went to the feeding clinic, they were happy she gained weight. Switched her to an even higher calorie formula for G-tube feedings to get weight up higher. Still has more weakness lately, lots of falling.

Jonathon W
Date updated: 11/19/2008
Age: 13
Diagnosis: unknown genetic syndrome
Current email address: ladykissendyl@comcast.net
Update: Johnny had a serious systemic reaction after his last allergy shot,he was treated by the medical staff and is fine now. His next shot will be in 3 weeks, hopefully it goes smoothly.

Joshua A
Date updated: 11/20/2008
Age: 9
Diagnosis: Acute Lymphoblastic Leukemia
Current email address: B9StoME@aol.com
Update: Joshua was diagnosed with Neuropathy on Nov 11th. He had his MRI done today. He wil have some other testing done in December to see how much nerve damage has been done.

Josh W
Date updated: 10/16/2008
Age: 12
Diagnosis: Hypoventilation Syndrome
Current email address: vanessa_mom_wooten@yahoo.com
Update: Joshua graduated from 4th to 5th grade. Had upper respiratory illness in Sept and missed a week plus of school. Body mass index is big issue; on strict diet and increased growth hormone injections.

Julianna Elizabeth R
Date updated: 10/12/2008
Age: 3
Diagnosis: Mitochondrial Disease + more
Current email address: nenea1294@aol.com
Update: Juliann has been diagnosised with Mitochondrial Disease, Cortical Blindness, Optic Atrophy,seizures, Thermal irregularity, hypotonia, developmentally delayed,g-j tube,periventricular luekomylasia.

K

Kaitlyn C
Date updated: 11/14/2008
Age: 12
Diagnosis: Brain Tumor
Current email address: erkellyc@yahoo.com
Update: It was pretty rough month.Her headaches are back and she is in quite a bit if pain.They found an abnormal spot on the frontal lobe of her brain.We are hoping this is just a bump in the road and there is an easy fix.

Kaitlyn Rebekah M
Date updated: 10/16/2008
Age: 14
Diagnosis: Immune Deficiency
Current email address: xan86@bellsouth.net
Update: Kaitlyn has been sick since the beginning of October, she is back on antibiotics and using her breathing machines. She is still doing her weekly treatment of IVIG. Please keep her in your prayers.

Karly Z
Date updated: 10/22/2008
Age: 13
Diagnosis: Epilepsy, Ovarian Cancer
Current email address: michelle@zoromski.com
Update: Karly is doing very well - she completed her radiation treatments in July, She'll hopefully be returning to school soon.

Katia S
Date updated: 10/11/2008
Age: 8
Diagnosis: Leukemia AML
Current email address: tmsol87@aol.com
Update: Katia continues to have her graft verses host issues (rejection of marrow) but is happy to have her tutor back!! She is enjoying the Fall weather and loves her cards. Thank you all. Love, Tracy (Mom)

Katie J
Date updated: 9/24/2008
Age: 7
Diagnosis: cerebral palsy hydrocephlis
Current email address: club_katie@yahoo.com
Update: he has been all smiles since brownie girl scouts has started up again. she loves signing and crafts! likes:katie could use some "girly looking" baseball type hats, helps with sensitivity

Kevin W
Date updated: 10/16/2008
Age: 10
Diagnosis: Spherocytosis, Anemia
Current email address: ncmommy72@aol.com
Update: Kevin is doing well. We just moved and he is in another school. He has to go through testing again to be placed, he struggles in a few areas. He will be going for bloodwork next month.

Kimberley G
Date updated: 11/17/2008
Age: 14
Diagnosis: cp,seizures
Current email address: mary@geislers.org
Update: Kimmie will soon be 15. Wow where has time gone. She will be having surgery on Nov. 25. She will be getting a lot of shots and maybe some releases done.

Kody C
Date updated: 10/23/2008
Age: 6
Diagnosis: Hemimegalencephaly
Current email address: Randiscan@yahoo.com
Update: Kody is continuing to work hard trying to walk and talk. He is finally off the bottle! Him and his twin sister LOVE their happy mail!

Kristen K Date updated: 10/16/2008
Age: 18
Diagnosis: Congenital Central Hypoventila
Current email address: servedogmom@yahoo.com
Update: Inactive - October 2008

Kristofer H
Date updated: 10/18/2008
Age: 18
Diagnosis: Sturge-Weber Syndrome
Current email address: chcompgrad@cox.net
Update: Inactive - October 2008

Lauren W
Date updated: 11/11/2008
Age: 13
Diagnosis: Rett Syndrome
Current email address: Alhw60@aol.com
Update: Lauren is doing pretty good at the moment, a little congested due to allergies but that's the norm. Thanks you to all for all the wonderful cards, God Bless, Lauren really loves them, makes her truly smile:-) Happy Holidays!

Latosha S
Date updated: 11/20/2008
Age: 14
Diagnosis: bardet biedl
Current email address: PAMELASULLENS@YAHOO.COM
Update: Latosha is getting over her bruised ribs from a fall in pe, but is suffering from a stomach virus tonight and feels pretty bad. Looking forward to thanksgioving break.

Lawson W
Date updated: 10/16/2008
Age: 6
Diagnosis: GERD, Hypoglycemia, Reactive A
Current email address: kwells2kids@yahoo.com
Update: Lawson is doing pretty well. He got his G-Tube removed and was very excited. He has lost some weight, but we try every day to encourage him to eat. He will need tubes put in his ears soon.

Lisa B
Date updated: 11/12/2008
Age: 5
Diagnosis: 3 open heart surgs, 2 strokes
Current email address: betpj@aol.com
Update: 11/14 to 11/20 Hospital stay at Duke Univ, 3 hrs. from home, for a cardiac catheterization and electrical heart studies. Dad was laid off after 12.5 years with his company, Lots of stress in family at the moment.

Logan C
Date updated: 11/2/2008
Age: 9 yrs old
Diagnosis: A.L.L.
Current email address: krylog@yahoo.com
Update: 11-2-08 Logans last dr. appt was in July 08. He has been very healthy since. Now he is getting older he has new interests. He loves to go fishing with his dad and grandpa, ride his bike, play on computer, he likes ICARLY tv show.

Maddison W
Date updated: 11/2/2008
Age: 8
Diagnosis: e-wings sarcoma
Current email address: haws_2@msn.com
Update: Maddy is 4 years in remission and right now is healthy! Keep praying she stays that way!

Mattie L
Date updated: 11/18/2008
Age: 8
Diagnosis: Klippel Feil
Current email address: avonbyshelly@gmail.com
Update: We will be in Philadelphia for a check up the first week in Dec. Her Baha surgery is still healing well. She has a bladder procedure coming up. Thank you for all our happy mail!

Maya O
Date updated: 11/2/2008
Age: 9
Diagnosis: mitochondrial Disease
Current email address: mom2maya@centurytel.net
Update: Surgery went well. She's looking forward to the holidays and we're hoping to be out of the hospital. Medically she's stable with home IV meds and TPN for nutrition.

Melorah M
Date updated: 11/1/2008
Age: 8
Diagnosis: Dravet
Current email address: mcmahanj@mac.com
Update: The first part of the month was rough with seizures and infections but she is doing better. She LOVES all the cards - thank you so much!!

Michael H
Date updated: 10/22/2008
Age: 8
Diagnosis: premature, legally blind, etc
Current email address: sherry_house2001@yahoo.com
Update: Michael has been doing really well in school this year. We have had a few virus' going around our family, one of which took Michael 4 weeks to fight off and he ended up in the emergency room because of it. We are all doing better.

Nate H
Date updated: 11/19/2008
Age: 6
Diagnosis: EGID and Many other conditions
Current email address: luvourkids2002@yahoo.com
Update: Nate is still adjusting to wearing braces on his legs. He is on antibotics again for ear, sinus and lung infection. He is also back on 24/7 tube feeds. He failed all recent food trials. Please pray for his Happiness. Luv~Ashlie

Nicholas L
Date updated: 10/18/2008
Age: 6
Diagnosis: SMA 1
Current email address: bethml@fuse.net
Update: Nicholas has been very healthy. He just turned 6 in Sept.

Nicole T
Date updated: 11/5/2008
Age: 10
Diagnosis: Hydroencephaly
Current email address: rtrease@nntc.net
Update: Nikki will have surgery Nov 18 in Omaha. She continues to have problems with her bronciiectasis and COPD. She now has a bladder infection. She also tested positive for MRSA, once again. Please pray

Rebecca B
Date updated: 11/12/2008
Age: 7
Diagnosis: Batten's Disease
Current email address: qajchook@gmail.com
Update: Becca was recently hospitalized for numerous difficulties but has finally returned home (after two weeks) with oxygen, a bi-pap machine, suction and a nebulizer. She is doing MUCH better.

Ryan B
Date updated: 10/17/2008
Age: 12
Diagnosis: Spinal Muscular Atrophy
Current email address: loraberhar@yahoo.com
Update: Ryan is doing well. We are entering into cold and flu season. Please keep him in your prayers during this time!

Ryan S Date updated: 10/13/2008
Age: 16
Diagnosis: Congenital Heart Defects
Current email address: tsheehan@rochester.rr.com
Update: Ryan has broken out in a rash and fever. The doctor has given him a shot to help with the itching, but if it does not clear up in a few weeks the doctor will do a biopsy.

S

Sarah B
Date updated: 10/18/2008
Age: 17
Diagnosis: Congenital hydrocephalus
Current email address: debwillbur@yahoo.com
Update: With the return of headaches, we're concerned the brain tumor may be becoming a MORE emergent issue. Waiting for the scheduling of an MRI and a return with the neurosurgeon.

Sarina S
Date updated: 11/2/2008
Age: 11 1/2
Diagnosis: Hodgkin's and others
Current email address: cloudraven@verizon.net
Update: Sarina is now on homebound for school. Still having lost of stomach issues. They now think she has abdominal migraines and is on migraine medication. She has lost more weight and very tired.

Savannah R
Date updated: 10/17/2008
Age: 15 yrs.
Diagnosis: Cystic Fibrosis
Current email address: youthful84@yahoo.com
Update: Savannah has cultured Staph again. She has been started on a oral antibiotic to try to keep her out of the hospital for a bit longer. Thanks for all the continued support. Julie (Savannah's Mom)

Shelby T
Date updated: 10/24/2008
Age: 16
Diagnosis: cerebal palsy, hallervoden-spa
Current email address: sassylg73@yahoo.com
Update: Shelby is gaining weight. She's like 65 pounds now, the Drs have been trying her on new meds because she hurts so bad. She has been biting her hands and fingers, we have to keep them wrapped up. Please pray for her.

Sierra Journey F
Date updated: 10/6/2008
Age: 7
Diagnosis: SMA,Kidney & Lung Disease
Current email address: Pixiechick1429@yahoo.com
Update: Sierra is going on her 2nd night at the hospital .. Prayers for her to get better quick!

Skylar S
Skylar passed away the end of April.  Keep her mom, Tracy, in your prayers.

Steven S
Date updated: 10/24/2008
Age: 17
Diagnosis: aids
Current email address: sockinabox@aol.com
Update: Inactive - October 2008

Sydney N
Date updated: 9/10/2008
Age: 7
Diagnosis: Dravet syndrome
Current email address: hopeforsydney@hotmail.com
Update: Sydney is having a rough time with school...she is on shortend day and a shortened week. She will be back in the hospital next week. She LOVES the mail, you guys really DO make a difference. xxx Dina

T

Tabitha M
Date updated: 10/4/2008
Age: 7
Diagnosis: CP/MR/DD, hydrocephaly
Current email address: fawnamcwilliams@verizon.net
Update: Tabby is doing well. It is approaching the time she will need another botox injection. She is starting to get fussy again when we work with her in physical therapy.

Test T
Date updated: 10/17/2008
Age: 1
Diagnosis: 1
Current email address: test@as.com
Update: asd as;dlfa;skjdf

Tiara Marie B
Date updated: 11/2/2008
Age: 12
Diagnosis: diabetes type 1 and eplipsey
Current email address: cuddlebugzx2@aol.com
Update: Tiara had a wonderful Halloween. She is starting to show signs of getting the nasty sinus infection / flu bug that the rest of us have had this past month. She is running a temp. of 101 tonight. Thank-you for the support and love.

Thomas G
Date updated: 10/22/2008
Age: 13
Diagnosis: myopathy
Current email address: faithtofaith@hotmail.com
Update: we just went thur 2 evactions for hurricanes(ike and gustav) all the travling has been to much for thomas,he is having alot of leg and back pain,please pray for him and we have alot of damage and cleanup to do Patricia

Tyler T
Date updated: 11/2/2008
Age: 8
Diagnosis: rabdo
Current email address: turpin10648@bellsouth.net
Update: Tylers had 2 pain free weeks.records have been sent to john hopkins in maryland.waiting to hear if the Drs there will be able to help Tyler.we go to musc about his legs 12tH also to see Dr White about his ear.Keep praying PLEASE

Vicktor T
Date updated: 10/17/2008
Age: 17
Diagnosis: Aspergers
Current email address: BrightIs7331@msn.com
Update: Vicktor received bad news from the neurologist yesterday. He will not be able to try and get his drivers license for at least another year. He may still be having uncon trolled seizures.

Zachary T
Date updated: 10/17/2008
Age: 11 on Tuesday
Diagnosis: microcephaly
Current email address: BrightIs7331@msn.com
Update: More bad news from the neurologist, Zachary has scoliosis. He probably has spina bifda or tethered cord as well, needs complete spine MRI.

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